114 Explaining ASD to Your Family and Friends

Autism spectrum disorder (ASD) is complicated to discuss with people unfamiliar with the diagnosis. When explaining ASD to someone, it may be helpful to discuss your child’s diagnosis in general and to also provide specific examples related to your child. For example, you could explain that ASD is a spectrum disorder where those with the disorder have challenges with communication, socialization, and repetitive actions or comments, then talk about the behaviors your own child displays. Keeping the information pertinent to your child will help to keep information brief and relevant.

As you explain, understand that others may react in ways similar or different to you, but will also likely need time to adjust after learning the diagnosis. Be open and encourage conversations about their feelings (e.g., fear and sadness). Support them in this process, moving at their pace and providing information in the format that they can best digest. This is an opportunity to explain and provide information about your child.

It is important to point out that no two individuals with ASD are alike, and symptoms displayed by one individual with ASD may be similar or different than those displayed by another with the same diagnosis.

Finally, don’t forget to talk about your child’s strengths and all the great things that make them unique. You expect them to accept these strengths and love them for who they are. Your child may need more space, understanding, or patience, and your family and friends may need to adjust how they would normally interact with children, taking your lead since consistency will be important. Encourage them to talk to you when they have any questions or concerns so that any interactions with your child can be the most beneficial. All caregivers are important to supporting you and participating in the growth and development of your child.

Most families and/or caregivers of individuals with ASD have times in public settings when the individual is engaging in negative behaviors. Others may stand watching and wondering and others may make snide comments reflecting their lack of understanding. Some people like to take those opportunities to inform others about ASD rather than giving into the frustrations that can come from others’ lack of support. The Autism Information Cards are designed to fit into a wallet so they can be taken anywhere. The cards can then be passed out to various people in the community when the family member or caregiver feels it is important and appropriate to provide the community members with education for an improved understanding of ASD.